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Nelson Flandez
THE DOUBLE RAINBOW ADVOCATES FOR CFNSW
Story
Hi there,
Every four days a baby is born with Cystic Fibrosis; a malfunction in the exocrine system which is responsible for producing saliva, sweat, tears and mucus. As a result the lungs and digestive system of a CF sufferer are affected by excessively thick and sticky muscus, causing impairment of the digestive functions and trapping of bacteria in the lungs resulting in recurrent infections. From birth, a person with CF undergoes constant medical treatments and physiotherapy.
In support for people living with Cystic Fibrosis, our team, The Double Rainbow Advocates have decided to make a difference by taking part in The Color Run and raising money for this very worthy cause.
Your donation will not only help to improve the quality of life for people with CF and their carers through much needed support services, but also aid education and research of CF of which their is currentely no cure.
Please support our efforts by making a secure online donation and leaving a message of support by clicking 'Donate Now'. Any contribution, great or small is very much appreciated!
All donations over $2 are tax deductible and you will be issued with a DGR receipt via email as soon as you make a donation.
Thank you so much for your support!
The Double Rainbow Advocates.
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Cystic Fibrosis New South Wales
Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians. 3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change.
Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their CF.
CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.
Our mission is to promote awareness of CF, provide support, advocacy and information to the CF community, and fund medical research into the fight against CF.
As a member of the national CF federation, we work with the communities of NSW and Victoria. We are a not-for-profit organisation and we rely on the generosity of people in those states for financial and volunteer support.
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